![]() ![]() ![]() Had I just assumed narcolepsy was responsible for all my symptoms, I would never had the other disorders treated and would have continued to decline and wonder why. Once those disorders were treated, my symptoms greatly improved - haven't had any cataplectic spells for a couple years now. I have multiple sleep disorders with symptoms of narcolepsy and cataplexy. I'm surprised any doctor would treat you for the narcolepsy without somewhat current testing on record. I don't mean to be intrusive, it just seems to me it's been far too long for you to not know the current status of your known medical condition. One extra benefit to these studies is your brain waves will also be monitored (an EEG). It's well known that strobe lights can trigger seizures - who is to say that's the only type of light that can? I still want to encourage you to have a sleep test that lasts overnight then through the daytime for some naps. I don't doubt that sunlight is affecting you neurologically. Please do careful journaling of your symptoms and the associations between the things you're feeling. I really do understand your hesitance about who to trust with symptoms that don't "fit". That was over two years ago and it's apparent that my recovery will likely never be complete. I've been through so much with doctors not taking me seriously and failing to recognize how dire my situation had become until I had a total collapse and lost my life as I used to know it. When I do have seizures, the symptoms often include a feeling of being in a play and having the wrong script. Wore dark glasses when I went outside, and only felt a little spacey. ![]() I set my alarm for 4AM today, and took my provigil then. I am sleeping my life away! Oh.just one more thing. I was asleep about 20 out of 24 hours yesterday. (How emotional can eating breakfast be?) So this is my final 'here's my question' Can a seizure cause a cataplectic condition? This does not feel anything like a narcoleptic sleep attack, and it is brought on by bright sunlight.like my seizures. The problem is, it is not caused by any emotional thing going on. I have read some things today about cataplexy, and this seems to be my symptoms.when I say I fall asleep and fall over, it could be just all-over muscle weakness, as described about cataplexy. Even though I don't hear what the conversation is.as soon as something is addressed TO ME, I will be wide awake. If no one says anything else TO me, I will fall over and be asleep again instantly. ![]() The strange thing is that if someone says 'well, she's asleep' I will immediately be wide awake, say 'no I'm not' and sit up. I immediately go to sleep, and almost instantly will start to dream. I try to fight it, but yesterday I was eating breakfast and became so afraid that I would go to sleep and choke that I spit it out and lay down on the couch. My husband said 'I want you to see the doctor about your equilibrium.you keep staggering' I think I am falling asleep standing up, then catching myself. I guess I fall asleep and start to fall over. I have hurt myself falling against things. This is far far worse than a sleep attack. But I DON'T.what I do is have an OVERWHELMING urge to go to sleep. But what has been making me NUTS for the past week or so is that as soon as I go outside, or look out the window, I start feeling that 'gonna have a seizure' feeling. I have read in these forums today about covering one eye, and special glasses that block glare. There is something about the quality of the light that causes a seizure almost everytime I go outside, even with sunglasses on. This problem becomes unbearable around the first part of the summer and the late part of fall. Here's the problem: (bet you thought I would never get there) My seizures are in the main, caused by bright sunlight. My narcoleptic 'sleep attacks' are pretty much taken care of with the Provigil, 9 hours of sleep a night, and a long afternoon nap. I have learned to live with the 'black holes' in my memory. I haven't had a 'confused' day in almost 10 months. He said 'didn't any of those Doc's mention that long-term dexidrene use can cause brain atrophy?' He took me off dexidrene, put me on provigil, and I started improving within a few months. After 3 neurologists pretty much told me to find a good nursing home, my doctor from 30 years ago came back to town, so I immediately made an appointment. Did things like turn on the water in the kitchen and go shopping for 5 hours. Two years ago I was told I have a 'progresive degenerative brain disorder'. I am photosensitive, although high-pitched sounds can also cause seizures. I have reflex epilepsy, with simple partial seizures. I appologize in advance for the length of this question, but it is complex, so I want to give all the info I can think of at the same time. ![]()
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